Once a week a nurse comes in to draw David’s blood and check on his daily IVs he gives himself. This ensures the hospital always has his most recent labs on hand for when he gets called in for his transplant. This weeks blood draw showed his sodium levels were too low. We don’t know what that means exactly except that he needs to go into the clinic on Monday to have it drawn again. Julie, his case coordinator, did say it had nothing to do with what he is eating and it can be helped with medicine if needed. It may just be a bad blood draw.
Dave getting his weekly blood draw
So even though many pictures of Dave make him look like he is doing better, we can never forget wherever he goes he always carries a bag filled with medicine and an ice pack, along with the tubes and drainage bag attached to his body.
Amazing he is usually smiling in pictures, don’t you think? Makes you wonder if you could do this.
Now that Dave is listed we decided he needed his own bedroom to convalesce after his surgery. We traded a furnished 2 bedroom for an unfurnished 3 bedroom in order to save on rent.
Thank you to all those involved in donating 3 brand new beds to us. Our backs are very grateful!!
Thank you to those who have sent in monetary donations so far. They are greatly appreciated.
We also want to thank a very special 11 year old young lady named Avery who took it upon herself to start a lemonade stand and a dog walking service in order to help with David’s medical bills. You are truly an Angel.
We’ve had several requests for donation jars. We will be sending these out soon. If anyone is interested in receiving a donation container to display, please contact me at firstname.lastname@example.org. I will also include business cards with Dave’s blog address on it to hand out. I can also email the flyer to anyone.
Sample donation jar
Dave had a clinic appointment today. The infection is significantly reduced. He gets to reduce the amount of antibiotics his has been taking by IV at home. This means I get to turn off my 2AM alarm that’s been set for me to wake him each morning so he can administer it to himself. He also gained 5lbs this week!!!!
But the best part of his day was another surprise!
Dave and Mackenzie picked up Skye at the airport today.
Mackenzie waiting patiently while gramma shops. Again!
Dave continues to get stronger everyday. I took him to the Duke Clinic this week and met Julie, his case manager. She gave me some pretty basic instructions. Fatten Dave up and keep all stress away from him. He has been craving Chinese food since he came home from his last hospital stay. “Dave can eat Chinese and any other food he craves. He needs to gain 10lbs as soon as possible.”. Julie told us.
Getting Dave to eat is not a problem. Keeping him stress free might be a challenge. But his mom had a surprise for him today that will help tremendously. Mackenzie came for a visit!
Mackenzie thanked her grandma for bringing her to her daddy!
Wahoo!!! David is listed!!!
After about 2 weeks of administering his own antibiotics by IV, Dave went in for a CT Scan yesterday. The team felt it was safe for Dave to be listed finally. I took him in for his blood work this morning, the final step. His UNOS score is 20 and he is in blood group B. We are not really sure where that puts him time wise, we just need to be ready. We are!
After Dave’s blood draw this morning we found the Duke Chapel. Breathtaking! The pictures don’t do it justice.
Dave and I needed 1on1 time with GOD