First and most important. Dave is doing fantastic! Sorry for the long quiet spell. I retired on 12/31 and had to turn in all my electronics, which here in NC meant just about everything, my laptop, iPad and iPhone. My means of communicating was severely limited. Long texts on a phone are tough. Finally, I received my new IPad Air today via Amazon (retirement gift), so I’m back in business. David is patiently getting me up and running. I am technologically challenged, for those that don’t know me. Sad considering what my husband does for a living – it does challenge his patience at times. Enough about me.
At last report, Dave and I were in the car headed to Florida. We arrived around noon on Tues, Christmas Eve day. Mackenzie was so happy to see her daddy and to take him home that evening with her to await the arrival of Santa. On the way to their house, Dave, Skye and Kenzie stopped to visit with Skye’s parents, Mike and Donna Hayslip, who hadn’t seen Dave in 7 months, since the night we left Mayo Clinic for Duke. Donna prepared a wonderful Christmas Eve dinner for them to celebrate Dave’s homecoming and to have their family Christmas. The 3 of them went home to wait for Santa. Santa did not miss Mackenzie.
Christmas Day they came back to Grandma’s house, where we were joined by Steve and Riley. It was a great day to have the family together after what seemed such a long time. Skye had to work, so Dave spent the rest of the visit at our house. Thursday was a quiet day, and Thursday night it was dinner and an IMAX movie for mom ,Gary, Dave and Steve. Mackenzie came back on Friday and spent the night wearing daddy out, then playing all day Saturday. It was tough to say goodbye. I had promised I would have Dave back in NC in time for his 8:00 a.m. Clinic appt on Monday so we were back in the car heading north early Sunday morning, not sure what the holiday traffic would be like. (Not bad)
Dave has had 2 clinic appointments since we returned. All good news. It seems the holiday visit is just what he needed! All his lab work showed good results. Dave has had good improvement in all categories. Except his triglycerides, but there is a better understanding of his genetic deficiency now, so the panic has subsided. He is now steadily gaining weight and is up to 106.5 lbs. Will he someday start the cycle of chronic pancreatitis over again? Maybe. Probably. God willing, not for years.
There is a target date of removing Dave’s feeding tube of 2/14. Maybe sooner if he continues to gain weight at this steady pace and continues several more weeks of such good looking blood lab results. I have included a recent picture – judge for yourself on how good he looks. Everyone at clinic was so impressed with his improvement.
As always, thanks for caring.
Linda and David
Dave & Mackenzie 12/26/13
Dave, Skye & Kenzie 12/18/13
Mackenzie & Riley 12/25/13