Duke campus when snow began
We arrived back in NC on Monday evening, just in time for the beginning of the storms blanketing the south. Dave asked that I turn the car around. It was 72 when we left Florida. It was 34 when we arrived at our apartment. More on our snow adventure later.
We had a great 8 day visit home in Florida, not without some drama and Dave’s first visit back to the Mayo Clinic ER since the night he was medevac’d out back on May 29.
We arrived in Florida on Sunday February 3. Mackenzie and Skye picked Dave up from my house. It was all Kenzie could do to stay for a 15 minute visit. She had ahold of her daddy by the hand, practically dragging him out the door. It was time to go home she said. She made him sit in the back seat next next to her. She was one very happy little girl.
Monday brought another exciting milestone for Dave. He was able to start driving again. It had been almost a year. Things were beginning to feel pretty normal.
We did have some fun family time along the way. Attached is a picture of Dave and Steve at the drag raceway where Steve frequently races. Yes, Dave did take a few turns as a passenger in the car. Something he has been talking about doing for months. Steve was happy to oblige I too hopped in the passenger seat for a few runs!
Dave and Steve
Dave and Steve
Steve, Dave, Linda & Riley at track
So by now you all are wondering about the ER visit I suppose. Out of
the blue Dave started noticing blood in his urine periodically. Started on Thursday. He did not mention it to either Skye or me until Saturday when he started vomiting. Neither did he pick up the phone and report this unusual happening to the transplant team. We did call the team Saturday. They wanted him evaluated immediately before we drove back, assuming it was kidney stone, but he wasn’t in pain. We had an 8 hour drive back to NC and his team did not want to risk that before ruling out any critical problems, which they were able to do. Skye and Dave spent about 6 hours at Mayo, while I enjoyed a day with Kenzie and Riley. The vomiting stopped. No explanation for that. No stones showed up, no leaks, or tears, but the bleeding continues. Not a significant amount to cause drop in BP but something definitely wrong. He feels fine! He was cleared for our drive back to Duke and his team who were very anxiously awaiting his return. They may never let us go home again. I think him having an issue was harder on them than us!
After 2 long days of clinic visits, tests and specialists at this point (and it turns out what was apparently the teams biggest fear unbeknownst to us until after the fact because he had so many of the symptoms) he does not have bladder cancer. It turns out his anti-rejection meds, if any cancerous cells are present, cause fast growth. We did not know that. Based on the phone calls and how we were being run around in the midst of an oncoming major storm when every thing was being shut down around us I was not without my suspicions. It would appear he does have a bladder infection. We do not know yet if it is virile or bacterial. We don’t have all cultures back yet. It does reinforce the fact that Dave is and will always be immunosuppressed. His body cannot fight off infections. He did let this go too long before telling anyone of symptoms. He won’t do that again. A minor infection could very quickly overtake his whole body. I think he understands that, now. We are back on weekly clinic visits with the next one scheduled for next Wednesday.
Dave 2 1/2 hours and 6 inches later
The storm. I included a couple of pictures. First picture is the Duke
clinic campus as snow beginning. Coming down thick and fast. We were
walking to garage. It took us 40 minutes to exit the garage. What a mess on roads. All non essential employees were released from all the clinics at once. This caused total gridlock. Our normal 12-15 min drive took 2 1/2 hrs. The dusting of snow turned into 6″ by time we arrived at our apartment. The roadways looked like Atlanta last week, with cars abandoned everywhere. Cars with no traction were not able to continue on major highways, mostly due to lack of experience in driving in the snow and ice. I think Dave was proud of mom.
The little ole lady with the Florida car tags that kept us moving and made it safely, not without a few dirty looks. All those years of
experience in Chicago winters gave me a huge advantage I am sure. Today we are expecting another 1-3″ of snow, but despite icy rain last night we did not lose our power. Keep in mind we were told it rarely ever snows in Durham, NC when we got here!
As you can see, adventures with Dave continues ……………..
As always, thanks for caring!
Linda and Dave