June 21, 2014

Dave is doing fantastic and we have the official word to make our plans to move back home to Florida. His wound from the Ilieostomy reversal is still healing, and he gets tired quickly, but other than that, he is in better health than he has been in years. Even the BK virus is almost completely gone. It is at a low level of 450, down from the highest point of 33,000. That said, weekly blood draws are in his future for some time to come. It is the single most important way to track any early sign of organ rejection, or any other medical issue that might occur with Dave right now.

Dave’s doctor at Mayo Clinic has been contacted, and I am told, was genuinely very excited to get the call that he was ready to come home. She quickly agreed to accept him back as her patient (she is top GI and pancreas specialist there) and is working to pull the liver transplant team together that will follow Dave.

Speaking of teams, meet DAVE’s CLINIC TEAM.
Dr. Rege, Abdominal Transplant Fellow – she has been his primary week to week Dr and also participated in his surgery. Julie, RN – Team Coordinator and our life line. She is the link that holds literally everything together. Kitzsa – Nurse Practitioner

Dave's team

Dave’s team

The move home is happening the weekend of 7/11. Steve and Riley are flying in on 7/8 to help pack up. Gary arriving on 7/10. He says he and Steve will start loading that evening, finish the morning of 7/11, after taking apart beds and getting us out of town before any Drs change their minds!

As of now, Dave’s last appt with Dr Sudan, Chief Surgeon, is 7/2. We aren’t expecting any surprises but we did leave ourselves a week. It is also our understanding, Dave will return to Duke University
Hospital, annually for a check up for the rest of his life.

Dave’s Aunt Kathy saw her back surgeon post op yesterday. 2.5 weeks ago she had 6 screws, 2 rods, 3 spacers (in between disks)and cadaver bone inserted at her L4, L5, and L6 vertebrae. She is up and walking about a mile a day along with performing most household chores that doesn’t include bending or lifting. She even went to see her son’s performance last night. Although, like Dave, she too gets tired quickly.

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Kathy’s Dr. had this to say. “You are a walking miracle! Not because of the surgery I performed, but because of the recovery you’ve made.”

Our family is proof that prayer produces miracles!

We will keep you all updated.

As always, thanks for caring.

Dave and Linda

Dave dlmyersinc@gmail.com (904)327-1492
Linda linda212@tds.net. (904)610-7352

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June 10, 2014

Dave’s surgery last Monday, went very well, he encountered no surprises. The small intestine is working and he was released from the hospital on Friday. He is very uncomfortable and spends most of his time sleeping. The discomfort is from the terrible gas pains and bloating associated with this particular surgery. It can last 2 weeks or longer. He has no appetite and, as expected, has lost considerable weight. He is down to 103 lbs. Dave has an open surgical site. It is best for this to heal from inside out. My job daily is to clean the site and pack with a saline soaked piece of gauze. His daily routine consists of logging daily weight, temp, BP every morning. We then take a walk, a little more each day to help get things moving. He then goes back to sleeping most of the day away. In the old days, this was all done in the hospital as patients were kept a lot longer. The only thing he eats is Cream of Wheat (not grits, sorry all you southerners), his choice, once a day. Nothing else appeals or interests him. I have tried luring him with some favorites. I hate to see him so thin! He is also drinking a nutrition supplement once a day. Getting fluids into him is a challenge. He knows the effect of dehydration on him. I have done a lot of reading on this surgery/procedure. There is a high rate of patients returning to hospital due to all sorts of things, dehydration (affected by his absorption rate which is unknown at this time) and infection being most common. Hoping Dave won’t be among the patients that do. So far, so good.

Dave’s Aunt Kathy, is also home after her back surgery. She is still in a lot of pain and, like Dave, spends most of her time in bed resting. After all, it is just 1 week ago yesterday since both of their surgeries.

As of now Dave and I are still on track to move home next month. Seeing how the next two weeks go will be important to reaching our goal!

As always, thanks for caring!

Dave and Linda

Dave: dlmyersinc@gmail.com 904-327-1492
Linda: linda212@tds.net 904-610-7352