David comes home!
David is out of hospital! Linda and Dave arrived at our home away from home , the apartment, along with him came 16 bottles of pills ($1,000 – ouch!). and his ever present feeding tube. We are awaiting arrival of home healthcare nurse to access Dave’s power port and to get him set up for his IV treatments. He will have a daily IV infusion to treat a fungal infection (in the fluid accumulation in belly) and 2nd IV infusion 3 times weekly for iron replacement. His feeding pump will run from 6:00 p.m. To 12:00 noon daily. The feeds run off a pump hidden in a back pack so he can be mobile.
Schedule wise – Dave will be seen at the transplant clinic as an outpatient, weekly until further notice, approximately 3 months.
The next two months are still a high risk for rejection, but all looks good, so no reason to think negative thoughts.
Dave is celebrating his 36th birthday on Sunday, Oct 20th. He can’t have cake or ice cream but it will certainly be a day to celebrate considering the uncertainty of his future just a few short months ago. Go to the contact page for our address for any who would like to send b-day cards.
Also, Dave’s monthly prescription costs are enormous along with his continuing health care. Unfortunately, insurance does not cover all these costs, so the burden falls on Dave and Skye. I would hold a fundraiser for him, but it has proven difficult for me to be both a caregiver and fundraiser. I welcome any and all help in this area. Whether this help comes in the form of a fundraising event, or simply a donation. Please see Donations page for information.
c’mon if young Avery can do it for Dave, so can you. We really need your help and ideas.
thank you,
Aunt Kathy
dlmyerstransplant 